Celebrities
Adam Sandler, Brad Pitt, Courteney Cox, David Arquette, Eva Longoria, Gavin Rossdale, Gwen Stefani, Jackie Sandler, James Marsden, Jennifer Aniston, Kate Beckinsale, Orlando Bloom, Rashida Jones
Charities
EB Medical Research Foundation
Causes
March 27, 2008 by Elizabeth Willoughby
The clock is ticking for actors Courteney Cox and David Arquette, who have pledged to raise $1 million in two weeks to benefit the Epidermolysis Bullosa Medical Research Foundation (EBMRF).
Epidermolysis Bullosa (EB) is a genetic condition that causes skin and linings to break and blister at the slightest touch. Sufferers battle daily with fluid loss and infection of the open wounds. In worst cases, they’ll die of skin cancer before the age of 40, many in infancy.
“Now is such an important time to put the spotlight on EB and ensure that research can continue at a fast pace,” Cox told the Associated Press.
Both Cox and Arquette are honorary board members of the foundation, as are actors Jennifer Aniston, Brad Pitt, Jackie and Adam Sandler and singers Gavin Rossdale and Gwen Stefani. Kate Beckinsale, Orlando Bloom, Rashida Jones, Eva Longoria and James Marsden have also joined the challenge to bring much needed attention to the painful disease.
Cox and Arquette have a personal link to EB as someone close to them suffers from it. To raise funds for EBMRF on an ongoing basis they have co-designed a necklace with a butterfly, a symbol for hope and freedom, etched onto a small silver pendant, on sale at SATYA boutique in New York and online at www.satyajewelry.com.
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2 comments
THANK YOU!! I have EB, as do my mother, sister, brother, niece, nephew, son and now my young grandson. My son once asked me why we couldn't just cut off his hands and feet and sew on new ones! I cannot express my gratitude to Ms. Cox and Mr. Arquette for their work in this important cause. It will take others who are well-known and influential to join in and help raise the funds needed for research. My heart breaks to know that not only did my son miss out on a "normal" childhood of playing ball, riding is bike and other things - now my 4 year old grandson is facing the same plight. He loves any kind of ball or outdoor activity and knowing those days will be few is devastating. Thank you again, from the bottom of my heart for all of your care and hard work.
Thank you so much for caring
It is great to know that someone with the power to reach many is helping my grandson in finding a cure! For so many children time is of the utmost importance! Help us protect the truly innocent!
about 1 year ago