14-year-old Jordanne, who has Spinal Muscular Atrophy Type 2 (an incurable muscle-wasting disease), travelled from her home in Gloucestershire to meet band members Max, Siva, Jay, Tom and Nathan at the Motorpoint Arena in Cardiff before they took to the stage as part of their first ever UK arena tour.
Before meeting the band Jordanne, who relies heavily on her pink electric wheelchair, was able to listen to the sound check along with her Mum, Samantha, and sister, Shannon. Jordanne was so overwhelmed when Siva blew her a kiss and Jay came down to speak to her that she cried! After the sound check she finally got to meet them all, including her favourite – Nathan – who had a discussion with her about the quality of his bacon sandwiches! After meeting the band Jordanne said: “This was what I had been waiting for, for two weeks, and it was overwhelming. I really love them!”
Jordanne was diagnosed with SMA Type 2 when she was just two years old. In 2008 she had a scoliosis repair to straighten her spine and currently sleeps on a ventilator. Jordanne’s Mum, Samantha, explains how her illness restricts her from doing certain things and the family as a whole have to be more aware of everything. She said: “I’m really pleased that Make-A-Wish was able to fulfil her wish – we’re very grateful to the charity.”
Jordanne went on to say: “There wasn’t just one good moment, the whole thing was amazing! …I’m still getting flustered and excited about it now. Thank you, Make-A-Wish, for everything you do and have done for me. That little bit of magic still brightens up my down days.”
Source: Make-A-Wish UK